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Parents with Disabilities Information Center

Organizations

  1. Confessions of DeafBlind Mother
    This site features the blog of Tracy Stine, who is deaf, legally blind and a mother of two children. She also posts videos and resource ideas for a variety of disabilities. [More Information on Confessions of DeafBlind Mother]

  2. Maternal and Child Health Library
    The Maternal and Child Health Library offers a wide variety of electronic resources about maternal and child health, including the MCH Alert, knowledge paths, databases, and other materials developed for professionals and families. The library is located at the National Center for Education in Maternal and Child Health at Georgetown University. The library's knowledge path, Children and Youth with Special Health Care Needs, points to resources that analyze data, describe effective programs, and report on policy and research aimed at developing systems of care for children and youth with special health care needs that are family-centered, community-based, coordinated, and culturally competent. Separate sections address specific aspects of care and development, such as early intervention and special education, financing services, rehabilitation, screening, and transition. The knowledge path is designed for health professionals, program administrators, policymakers, educators, researchers, and families, and it will be updated periodically. [More Information on Maternal and Child Health Library ]

  3. National Center for Parents with Disabilities and their Families
    The National Center for Parents with Disabilities and their Families. The Center targets three national populations: (1) parents with diverse disabilities; (2) family members; and, (3) service providers and trainees who have a particularly critical impact on parents. The Center's activities focus on priority issues facing parents with disabilities and their families: custody and parental evaluations; family roles and personal assistance; paratransit; and, intervention with parents with cognitive and intellectual disabilities and their children. This National Center is funded by NIDRR, U.S. Department of Education and is operated by Through the Looking Glass. [More Information on National Center for Parents with Disabilities and their Families]

  4. Parents with Disabilities Online
    Formerly Diana Michelle's Home Page, this site, by a mother with a disability, is designed to be a "one-stop" resource for parents with disabilities. "Our goal is to show that people with disabilities can make independent parenting a reality." The site has a broad list of resources such as web resources; books and magazines; and product information including descriptions and pictures of adaptations made to cribs and other products for infants and toddlers to make them accessible. [More Information on Parents with Disabilities Online]

  5. Project STAR - Parents with Disabilities Project
    The Parents With Disabilities Project is an informational, referral and advocacy service for adults with disabilities who are parents, pregnant, or are considering pregnancy or adoption. The project's services include a Parent Advisory Network, a reference and resource library, education and training programs for health care providers and community organizations, an adaptive parenting strategies program, and links to other organizations serving parents with disabilities. [More Information on Project STAR - Parents with Disabilities Project]

  6. Ricability
    Ricability is a British national research charity dedicated to providing independent information of value to disabled and older consumers. Ricability researches and publishes consumer reports. The reports are based on rigorous research and provide practical information needed by disabled and older consumers. Ricability staff also work with manufacturers, service providers, regulators and policy makers to improve products and services. [More Information on Ricability]

  7. Through the Looking Glass
    Through the Looking Glass (TLG) is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement, and was founded in 1982 in Berkeley, California. [More Information on Through the Looking Glass]

View State Specific Organizations

Conferences                                                         Return to top of page

  1. 2015 Abilities Expo - Los Angeles
    March 6, 2015 to March 8, 2015 in Los Angeles, California, United States
    Abilities Expo reaches out to all ages and all sectors of the Community, including wounded veterans, persons recovering from immobilizing accidents, seniors with age-related health concerns, children with disabilities, individuals with mobility and spinal issues, people who have vision and hearing impairments, people with developmental disabilities and many more. Abilities Expo features three days of cutting-edge products and services, compelling workshops, and fun-for-the-whole-family activities. Attendees will be able to: . Discover the latest products and services designed to meet the daily challenges of people with disabilities. . Attend seminars and workshops that address a wide range of themes - from dating to financial planning and from choosing a wheelchair to canine assistance. . Participate in adaptive sports, crafts, dance, technology showcases, and assistance dog demos. [More Information on 2015 Abilities Expo - Los Angeles]

Past Conferences                                                         Return to top of page

  1. 2009 International Conference on Self-Determination
    May 3, 2009 to May 5, 2009 in Winston-Salem, North Carolina, United States
    The conference will discuss issues relating to self-determination for individuals with disabilities, their families and allies. [More Information on 2009 International Conference on Self-Determination]

  2. ATIA 2006 Conference
    January 18, 2006 to January 21, 2006 in Orlando, Florida, United States
    ATIA 2006 is the annual conference of the Assistive Technology Industry Association, a not-for-profit membership organization of manufacturers, sellers or providers of technology-based assistive devices and/or services. The conference serves as a forum for the Assistive Technology community to participate in presentations and discussions about new technology, practical applications, and services. Segments of the Assistive Technology industry (Augmentative and Alternative Communication; Blindness; Computer Access; Curriculum Adaptations; Deaf and Hard of Hearing; Electronic Aids to Daily Living; Games and Recreation; Learning Disabilities/Study Aids/Literacy; Low Vision; and Mechanical Accessories and Mounting Devices) will be represented in various presentations, demonstrations and/or exhibits. In addition, a hands-on lab will provide an opportunity to experiment with and evaluate the latest assistive technology devices and software available. ATIA 2006 is for anyone in the Assistive Technology Community: Administrators AT Consultants Community Technology Center's Network (CTCNet) Consumers Government Personnel Occupational Therapists Parents Persons Interested in AT Physical Therapists Speech-Language Pathologists Teachers Technology Specialists. At the conference, you can learn about practical applications and uses of the current products, software and technology as they apply to: AAC and Language Development Advocacy and Policy Early Childhood Government Funding Independent Living K-12 Literacy Print Access Section 508, E&IT/Accessibility and Interoperability Workforce Development and more. [More Information on ATIA 2006 Conference]

  3. ATIA 2004 Conference and Exhibition
    January 14, 2004 to January 17, 2004 in Lake Buena Vista, Florida, United States
    The Assistive Technology Industry Association (ATIA) will hold its 2004 Conference and Exhibition on January 14-17, 2004. ATIA 2004 serves as a leading forum for the Assistive Technology community to participate in presentations and discussions about new technology, practical applications, and services. [More Information on ATIA 2004 Conference and Exhibition]

News                                                         Return to top of page

  1. Webinar: Affordable, Cutting Edge Mobile Technologies to Improve Executive Function and Learning
    Feb 11, 2014
    Therapists, teachers, parents and others who work with students who have executive functioning and learning challenges are welcome to attend a free 90 minute webinar on 2/13/14 from 4:30-6:00 PM EST with practical and affordable ideas for using touch tablets , smartphones and computers to improve attention, organization, executive functioning and learning. Join Joan Lipman Green, a speech-language pathologist who specializes in empowering families as well as professionals with the knowledge of technology tools and strategies to speed up progress toward goals and enhance academic success. In this webinar she will highlight her top picks of apps and interactive web sites as well as built- in accessibility options of mainstream devices to help you zero in on the technologies that may be most appropriate for your students. [More Information on Webinar: Affordable, Cutting Edge Mobile Technologies to Improve Executive Function and Learning ]

  2. Parents with Visual Impairments Asked to Participate in Telephone Interview
    Dec 05, 2006
    Researchers at the University of Arizona and Northern Iowa University are seeking parents who have visual impairments to participate in a telephone interview. The purpose of the study is to learn about the strategies, concerns, and experiences these parents have as they raise their children. Parenting partners of participants will also be invited to participate in the study.

    Who Qualifies as a Parent with a Visual Impairment for this Study?

    • One whose visual impairment impacts daily life (e.g., ability to read standard print, drive)
    • Individuals raising one or more children, one or more of whom must be a senior in high school or younger
    • If separated from the other parent, your child(ren) are with you on average 50% of the time or more during a given month.

    Who Qualifies as a Parenting Partner for this Study?

    • A husband or wife
    • An ex-husband or ex-wife
    • A same-sex partner who is sharing in the raising of the child(ren)
    • A roommate or family member who is living in the home and sharing in the raising of the child(ren).

    To participate, please go to the Web page linked below or contact Dr. Sunggye Hong by telephone at 319-273-7954 or by email at hong@uni.edu.

    This research will be conducted by Dr. Sunggye Hong of Northern Iowa University and Dr. L. Penny Rosenblum and Ms. Beth Harris of the University of Arizona. [More Information on Parents with Visual Impairments Asked to Participate in Telephone Interview]

  3. Extreme Makeover Incorporates Universal Design
    Jan 05, 2005
    On each episode of ABC's "Extreme Makeover: Home Edition", a team of professional designers is given one week to transform an entire home - interior and exterior. In many episodes, the designers incorporate universal design concepts into their rebuild. In an October 2004 episode, the team went to work for the Vardon family in Detroit, Michigan. Judy and Larry Vardon, both of whom are deaf, have two sons, one of whom is blind and autistic. The "Extreme Makeover" team worked with HITEC Group International to incorportate innovative assistive technology solutions to facilitate communication between the family members and to make a safer environment for all of the Vardons. [More Information on Extreme Makeover Incorporates Universal Design]

  4. Exceptional Parent Libary Offers Discount on Osteoporosis Video
    Mar 08, 2001
    The Exceptional Parent Library is offering a discount of 33% and free shipping for the recently released video, "The Challenge of Osteoporosis for People with Disabilities: A look at risk factors and prevention." Many of the 54 million Americans with disabilities - including those with cerebral palsy, muscular dystrophy, multiple sclerosis, spina bifida and other physical disabilities - face special health challenges. Osteoporosis, or thinning and weakening of the bones, can be one of the most critical. "The Challenge of Osteoporosis for People with Disabilities" is a 15-minute, full-color, broadcast quality video that comprehensively explores the impact of osteoporosis for individuals with physical disabilities. Developed as an informational and training tool for a wide audience, including people with disabilities and their caregivers as well as the general public, it features medical experts along with individuals with disabilities. It is narrated by medical news reporter and journalist Dr. Ian Smith. [More Information on Exceptional Parent Libary Offers Discount on Osteoporosis Video]

  5. Exceptional Parent Library announces the addition of online shopping at their website
    Jul 05, 2000
    EP Library, a division of Exceptional Parent magazine, is one of the largest sources of books, videos, CD's, and software for the disability community. This new feature makes it easier for parents, educators, and professionals around the world to obtain any of the products in the library by simply clicking a mouse. Eplibrary.com currently lists and details books, videos, CD's, and software in almost fifty specific as well as general categories. A search feature is provided on the site to help simplify things. Along with the addition of the online shopping feature, eplibrary.com provides reviews on many of the titles, providing even more in-depth information. [More Information on Exceptional Parent Library announces the addition of online shopping at their website]

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