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Stroke and Brain Injury Information Center

Organizations

  1. Accessible Space, Inc.
    "The mission of Accessible Space, Inc. (ASI) is to provide accessible, affordable, independent and supportive living opportunities for persons with physical disabilities and brain injuries, as well as seniors. This mission is accomplished through the development and cost-effective operation of cooperatively managed housing, supportive living, and rehabilitation services." ASI serves people in Minnesota, Nevada, Tennessee and other States. [More Information on Accessible Space, Inc.]

  2. American Health Assistance Foundation
    The American Health Assistance Foundation (AHAF) funds research on Alzheimer's disease, glaucoma, macular degeneration, heart disease, and stroke. AHAF also provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies. [More Information on American Health Assistance Foundation]

  3. American Occupational Therapy Association
    The American Occupational Therapy Association (AOTA) is the nationally recognized professional association for over 60,000 occupational therapists and occupational therapy assistants who work with people experiencing health problems such as stroke, spinal cord injuries, cancer, congenital conditions, developmental problems, and mental illness, in a wide range of practice settings including hospitals, nursing facilities, home health agencies, outpatient rehabilitation clinics, psychiatric facilities and schools. The mission of the association is to support a professional community of members and to develop and preserve the viability and relevance of the profession. The organization serves the interests of the members, represents the profession to the public, and promotes access to occupational therapy. [More Information on American Occupational Therapy Association]

  4. American Stroke Association
    The American Stroke Association is the division of the American Heart Association that's solely focused on reducing disability and death from stroke through research, education, fundraising and advocacy. ASA offers a wide array of programs, products and services, from patient education materials to scientific statements. [More Information on American Stroke Association]

  5. Anne McDonald Centre
    The Anne McDonald Centre provides services to people who are unable to talk, or to talk clearly, as a result of conditions such as cerebral palsy, strokes, acquired brain damage, autism, Down syndrome, or intellectual impairment - anyone whose speech is not clear enough, fluent enough or reliable enough to allow them to get across everything they want to say. The Anne McDonald Centre used to be called DEAL, standing for Dignity, Education, Advocacy and Language. When DEAL opened in 1986 it was the first centre in Australia solely devoted to the needs of people with little or no intelligible speech. [More Information on Anne McDonald Centre]

  6. Brain & Spinal Cord.Org
    BrainandSpinalCord.org was created as a knowledge-base for brain injury and spinal cord. The goal is to eventually have answers and information about all of the most frequently asked questions and important issues facing survivors of brain or spinal cord injury. The site's daily blog will have information about news and developments and the site includes in-depth articles, links to resources, and commentary on developments in research and recovery. They are also building a video library that with basic information that survivors need to know. The library will also offer videos of other brian injury and spinal cord injury survivors and their families who talk about lessons they have learned and tell their personal stories about hope and coping. [More Information on Brain & Spinal Cord.Org]

  7. Brain Attack Coalition
    The Brain Attack Coalition is a group of professional, voluntary and government organizations whose mission is to reduce the occurrence, disabilities and death associated with stroke. The goal of the coalition is to strengthen and promote the relationships among its member organizations in order to help people who have had a stroke or are at risk for a stroke. This site may more appropriate for doctors to help them make more informed decisions concerning the care of their individual patients; but there is a lot of useful information for the general public. The Brain Attack Coalition site is maintained by the National Institute of Neurological Disorders and Stroke (NINDS). [More Information on Brain Attack Coalition]

  8. Brain Injury Association
    With fully chartered associations or contact offices in every state, the BIA is one of the largest brain injury organizations in the U.S. This site is a great starting point for someone looking for information on stroke and TBI. [More Information on Brain Injury Association]

  9. Brain Injury Resource Foundation (BIRF)
    A subsidiary of the Brain Injury Association of Georgia, the Brain Injury Resource Foundation (BIRF)provides a world-wide accessible database of brain injury information and resources; a Georgia state-wide network of support groups; and a toll-free help line for the state of Georgia connecting families and professionals to appropriate resources. [More Information on Brain Injury Resource Foundation (BIRF)]

  10. BrainLine
    BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with traumatic brain injury (TBI). BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury. BrainLine is a WETA website funded by the Defense and Veterans Brain Injury Center through a contract with the Henry M. Jackson Foundation. [More Information on BrainLine]

  11. Children's Hemiplegia and Stroke Association
    CHASA is a non-profit 501(c) corporation that offers support and information for families of children who have hemiplegia, hemiparesis, or childhood, infant, or in utero stroke. This site contains research; rehabilitation support; advice for parents, teen and kids and education and products pertaining to child hemilegia and stroke. [More Information on Children's Hemiplegia and Stroke Association]

  12. Children's Specialized Hospital
    Children's Specialized Hospital is one of the largest pediatric healthcare rehabilitation systems in the United States and is among the preeminent providers of rehabilitation for children with special needs. The hospital serves children affected by brain injury, spinal cord dysfunction and injury, premature birth, autism, developmental delays, and life-changing illnesses. Children's Specialized has eight sites in New Jersey and treats over 17,500 children with special needs each year. [More Information on Children's Specialized Hospital]

  13. Coleman Institute for Cognitive Disabilities
    The mission of the Coleman Institute for Cognitive Disabilities is to catalyze and integrate advances in science, engineering, and technology to promote the quality of life and independent living of people with cognitive disabilities. Part of the University of Colorado, the Institute's primary activity is to provide grants for cognitive disability and technology research and development to CU faculty on all campuses of the university. The Institute makes grants that provide seed funding for research that may lead to patent-protected intellectual property and ultimately, commercialization. A major investment of the Coleman Institute has been in the $1.25 million co-funding of the $5.5 million center grant from the National Institute on Disability and Rehabilitation Research (NIDRR) to create the nation's first Rehabilitation Engineering Research Center for the Advancement of Cognitive Technologies (RERC-ACT). [More Information on Coleman Institute for Cognitive Disabilities]

  14. Craig Hospital
    Craig Hospital is a prominent center for rehabilitation and research for people with spinal cord injury and traumatic brain injury. Besides information on the hospital's services and research activities, this site offers general information on preventing and living with SCI and TBI. [More Information on Craig Hospital]

  15. Debbie Wilson's Family Brain Injury Blog
    Author and poet Debbie Wilson posts news and features on topics relating to traumatic brain injury (TBI). This blog is intended for TBI survivors and others interested in living with a brain injury and preventing TBI's and the negative consequences of these injuries, especially relating to anger and self-control. [More Information on Debbie Wilson's Family Brain Injury Blog]

  16. Dr. Diane (Brain Injury, Concussion, and Stroke Information)
    Dr. Diane Roberts Stoler, Ed.D. has been a health psychologist for 25 years. She assists individuals and families in the areas of chronic illness and pain management. She herself sustained a stroke and is a survivor of two traumatic brain injuries. This site offers useful resources, and it also advertise Dr. Diane's book on coping with mild TBI, several other related papers, and her services as a speaker and counselor. [More Information on Dr. Diane (Brain Injury, Concussion, and Stroke Information)]

  17. International Brain Injury Association
    The IBIA is a non-profit organization that is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury. They site some useful information on brain injury including the latest issue of IBIA's newsletter. [More Information on International Brain Injury Association]

  18. Internet Stroke Center at Washington University
    "The Internet Stroke Center exists to advance understanding of stroke research and clinical care. Our goal is to provide current, professional, un-biased information about stroke. The information on this site is obtained from published accounts, meeting presentations, internet searches, and direct correspondence." [More Information on Internet Stroke Center at Washington University]

  19. Journal of Cognitive Rehabilitation
    This journal from the NeuroScience Center offers comprehensive look at the rehabilitative process following brain injury. Content on the Web is available only to subscribers. [More Information on Journal of Cognitive Rehabilitation]

  20. Lash and Associates Publishing/Training
    The Lash and Associates site has information and publications on the consequences of brain injury in children, adolescents and young adults. The site includes various books, pamphlets, and other manuals available for order and/or subscription. Also provided are forums, newsletters, kids pages, and other useful tools to aid in the understanding of those with brain injuries. [More Information on Lash and Associates Publishing/Training]

  21. MossRehab Hospital
    MossRehab is a hospital in the Philadelphia area offers comprehensive care to people with a broad range of conditions--including stroke, brain injury, orthopaedic and musculoskeletal disabilities, spinal cord dysfunction, pulmonary disorders, amputations, and other forms of disability. The site also offers a wide variety of other information on disability-related subjects including the ADA and accessible travel. [More Information on MossRehab Hospital]

  22. National Aphasia Association
    Aphasia is often associated with stroke and brain injury. The NAA offers information on the medical causes of aphasia, contacting support groups and local assistance organizations, living with aphasia or someone who has aphasia, and the latest medical research. They also offer a semiannual newsletter, and opportunities to connect with others through a pen pal program. [More Information on National Aphasia Association]

  23. National Institute of Neurological Disorders and Stroke
    A component of the National Institutes of Health and the U.S. Public Health Service, NINDS is the leading supporter of biomedical research on disorders of the brain and nervous system. This site has updated information on brain research as well as more general information on stroke and other neurological disorders. [More Information on National Institute of Neurological Disorders and Stroke]

  24. National Organization of Disorders of the Corpus Callosum (NODCC)
    The National Organization of Disorders of the Corpus Callosum (NODCC) is a nonprofit corporation established in 2002 by professionals and parents. Their mission is to enhance the quality of life of individuals with agenesis of the corpus callosum and other disorders of the corpus callosum by gathering and disseminating information regarding these conditions. [More Information on National Organization of Disorders of the Corpus Callosum (NODCC)]

  25. National Stroke Association
    NSA seeks to reduce the incidence and impact of stroke by changing the way stroke is viewed and treated. It is the only national organization dedicating 100 percent of its resources and efforts toward stroke through prevention, education, treatment, rehabilitation, research and support for stroke survivors and their families. [More Information on National Stroke Association]

  26. Neurotrauma Registry
    This site provides a resource list to individuals and families affected by brain injury, spinal cord injury, or other complex neurotrauma, to assist in their quest for proper care. Members (including physicians, social workers, case managers, and other professionals dealing with neurotrauma) are provided with a forum to provide valuable information regarding their particular services. Resources from the U.S. are available on a state or local level, resources for other countries are available. The site has an extensive bibliography and links to information on legal issues. [More Information on Neurotrauma Registry]

  27. Perspectives Network
    The Perspctives Network is geared toward brain injury survivors. It has on-line archives of articles of interest to TBI survivors as well as an extensive listing of books and videos. There is also an FAQ's on brain injury page and a message board. [More Information on Perspectives Network]

  28. Queen Elizabeth's Foundation for Disabled People
    Queen Elizabeth's Foundation is a British organization that promotes equality for disabled people through eight specialist centres for disabled people in the United Kingdom. Services include job training and services for people with brain injuries. [More Information on Queen Elizabeth's Foundation for Disabled People]

  29. Rehabilitation Research and Training Center on Community Integration of Persons with Traumatic Brain Injury
    The mission of the RRTC on Community Integration of Persons with Traumatic Brain Injury (TBI) is (1) to increase access to information, resources, and services to those affected by Traumatic Brain Injury TBI, including traditionally under-served populations, that maximize participation in their communities and that treating professionals have the necessary information to meet the needs of persons with TBI; (2) to address all areas of community integration, including traditionally under-emphasized areas such as friendship, intimacy, and creative expression; (3) to reduce attitudinal barriers to community integration of persons with TBI; (4) to establish new types of partnerships, such as those with the larger disability community, in order to empower persons with TBI to have a voice in creating community services and networks to facilitate maximal community participation. [More Information on Rehabilitation Research and Training Center on Community Integration of Persons with Traumatic Brain Injury]

  30. Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions
    "The overall goal of the RRTC on TBI Interventions is to enhance the cognitive, physical, and emotional functioning of people with TBI. This goal will be accomplished through RRTC research activities that produce new knowledge. This knowledge will be translated by the RRTC into information useful for targeted audiences — through training, dissemination and technical assistance activities. The goal is the creation and adoption of innovative post-TBI interventions, improvement of community-based post-TBI treatment and services, and better research tools." [More Information on Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions]

  31. Second Chance to Live
    Second Chance to Live is a Web site written and maintained by Craig J. Phillips, a traumatic brain injury survivor and a master’s level rehabilitation counselor. He sustained an open skull fracture with right frontal lobe damage in 1967. The site presents information on living with TBI from his perspective and is intended to present topics in such a way to encourage, motivate, and empower the reader to live life on life’s terms. [More Information on Second Chance to Live]

  32. SeniorLiving.org
    SeniorLiving.Org offers objective information on a variety of senior living options, ranging from independent living to hospice. This site offers aggregated and standardized information from hundreds of sources, and its database is updated frequently. SeniorLiving.org also works with senior care experts to publish high-quality articles on assisted living and other issues relating to seniors and their caregivers. [More Information on SeniorLiving.org]

  33. Stroke
    This monthly research journal from the American Heart Association provides access to the latest published research relating to stroke. The content of the most recent issues are available over the Web. [More Information on Stroke]

  34. Stroke Connection Magazine
    Written by stroke survivors and caregivers, this bimonthly "provides a wealth of post-stroke information, hope and encouragement." It is useful for stroke families, caregivers and healthcare providers. The magazine is published by the American Stroke Association, a division of the American Heart Association. [More Information on Stroke Connection Magazine]

  35. Stroke Family
    This site features Barbara Dean Schacker's method of aiding stroke victims in regaining speech. [More Information on Stroke Family]

  36. TBI Help Desk for Caregivers
    Run by Jamaica Hospital Medical Center in New York, the TBI Help Desk provides a wide range of support resources for Traumatic Brain Injury (TBI) Caregivers at all levels, families and patients. [More Information on TBI Help Desk for Caregivers]

  37. Tbilife.com (Life with TBI)
    Developed and maintained by Dan Windheim, a survivor of traumatic brain injury (TBI), the purpose of this web site is to reach survivors of TBI and those individuals who are interested in knowing about the impact on an individual's life following one, and to provide a guide on living one's life after such an injury. Included in this site, is information about TBI; responses by TBI survivors throughout the world on various aspects of their lives; the opportunity to contribute your feedback about living with TBI; Dan Windheim's writings on his experiences; and information about his books for purchase. [More Information on Tbilife.com (Life with TBI)]

  38. Traumatic Brain Injury Resources Guide
    The TBI Resource Guide from the Centre for Neuro Skills is a comprehensive source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation. This site includes a database of the the 500 most recent articles on brain injury, a quarterly newsletter, a guide to selecting a rehabilitation facility, and a complete listing of national and state brain injury associations. [More Information on Traumatic Brain Injury Resources Guide]

View State Specific Organizations

Conferences                                                         Return to top of page

Past Conferences                                                         Return to top of page

  1. Brain Injury Rehabilitation Conference
    March 16, 2012 to March 17, 2012 in La Jolla, California, United States
    The Seventh Annual Brain Injury Rehabilitation Conference is designed to provide a clear understanding of the need for multidisciplinary strategies in the management of patients with brain injuries. A renowned faculty of interdisciplinary specialists will present the latest in research and outcomes from a variety of medical perspectives. Topics include interventions and management for medical and physical rehabilitation as well as cognitive, emotional, and social problems common to brain injury patients. A strong emphasis on the need for increased quality, efficiency, and value in response to health care reform will be a consistent theme throughout this conference, which is sponsored by the Rehabilitation Center at Scripps Memorial Hospital Encinitas. [More Information on Brain Injury Rehabilitation Conference]

News                                                         Return to top of page

  1. TBI Inform
    Aug 23, 1999
    Are you searching for information on Traumatic Brain Injury (TBI)? TBI Inform, the annual newsletter of the University of Alabama at Birmingham (UAB) Traumatic Brain Injury Model System (TBIMS) is now available. The 1999 issue of TBI Inform discusses the role of the TBI Model System in research and treatment of traumatic brain injury. TBI Inform is available on the UAB-TBI website at http://main.uab.edu/show.asp?durki=17117. For additional information on the UAB TBIMS visit their website at http://www.uab.edu/tbi. To be added to the TBI email distribution list, send email to tbi@sun.rehabm.uab.edu and type in the subject of body of the email "subscribe to TBI distribution list." For additional information, call 205/934-3283. [More Information on TBI Inform]

  2. Stroke Family
    Jan 11, 1999
    Using the latest technology, a new organization called Stroke Family helps stroke survivors practice talking at home with their computers. To find out more about how this program helps someone with aphasia re-learn speech, go to the Stroke Family website: http://www.strokefamily.org. From there, you can try the demo, or subscribe to the service. If you have questions, you can call Mike Schacker at 914/679-3717. [More Information on Stroke Family]

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